Surgeon General's Conference

Growing Up and Getting Medical Care:
Youth with Special Health Care Needs

A Summary of Conference Proceedings


   Surgeon General's Conference
Growing Up and Getting Medical Care:
Youth with Special Health Care Needs

A Summary of Conference Proceedings

PreparedandEditedby:

Phyllis FL Magrab, Ph.D.
Conference Chairpexson

Hilary E.C. Millar, M.D.
     consultant Editor

               Funded by
The Bureau of Maternal and Child Health
      and Resources Development

Jekyll Island, Georgia
  March 13-15,1989

National Center for Networking Community Based Services
    Georgetown University Child Development Center


Proceedings from the Surgeon General's Conference
         March 13-15, 1989

Growing Up and Getting Medical Care
Youth With Special Health Care Needs

Index

Executive Summary

Surgeon General's Introductory Remarks
C. Everett Koop, M.D.

Background Issue Brief
Suzanne M. Bronheim, Ph.D.

Section    Overview and Scope of Problem

       Learning To Be An Adult Patient
       Margaret Stineman, M.D.

Obstacles To Transition Prom Pediatric to Adult Health Care Systems
Daniel V. Schidlow, M.D.

Adolescents and Young Adults With Special Health Care Needs:
The Challenge for Financing
Peggy McManus

Preparation of Staff for Adolescent Transition
Hilary Millar, M.D.

Section II

A Case History
Discussion and responses from:
Merle McPherson, M.D., Kenneth W. Whittington, M.D., Athur B. Elster, M.D.

Section III    Successful Models:

Transitioning of Patients from Pediatric to Adult Care
Stanley Fiel, M.D.

The Hemophilia Model
Louis Aledort, M.D.

Young People with Rheumatoid Arthritis
Patience White, M.D.

Issues of Adolescent Transition in the Netherlands
Wietse Kuis, M.D.

Gerben Sinnema, Ph.D.

Section IV

Summary of Suggestions for Conference Action

Surgeon General's Concluding Remarks
C. Everett Koop, M.D.

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List of Participants