Thank you for your letter concerning the Home Care Project at Children's Hospital National Medical Center. I enjoyed
learning more about your project in its approach to care of the chronically ill child. Your discussion of the issues, the
lack of community resources, and the research needs struck several responsive chords. There is much that remains to be accomplished
in the development of support services for families with handicapped children.
The Office for Maternal and Child Health is supporting two research projects in this area. One project is looking at the
policy issues in the care of the chronically ill child. Many of the issues you raise are being studied. The other project
is researching a home care program in an urban area. Both of these to contact Vince L. Hutchins, M.D., Director, Office for
Maternal and Child Health, for additional information. Please can be reached at 301-443-2170.
We hope to hold a workshop on communities resources for the handicapped child, with particular emphasis on the respirator-dependent
infant, sometime next winter. I will keep you informed of our plans.